2012-03-19 17.18.11

My can-do-it hemo girl

By | Bleeding Disorders, Featured, Hemophilia, Philippines, von Willebrand Disease | No Comments

Don’t let anyone tell you what you cannot do. You can do it if you will. That is what I always tell my kids – including my now 13-year-old daughter Star, who was diagnosed with von Willebrand Disease (vWD) six years ago. VWD belongs to the group of bleeding disorders more known as hemophilia, where the person’s blood lacks the ability of clot.

Star is supposed to be a moderate “bleeder” but ever since she started having her monthly periods, I have second thoughts on the meaning of “moderate.” ….

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Getting clotting factors in the Philippines

By | Bleeding Disorders, Hemophilia, Project Share, Resources, World Federation of Hemophilia | 4 Comments

I’ve been getting inquiries on where to buy factor concentrates in the Philippines. Factors are the substances in the blood that act in sequence to enable it to clot naturally.

People with bleeding disorders either do not have clotting factors in their blood or their factors are defective, causing them to bleed more than normal. Some bleeds are more fatal than others, and in fact, several patients (including my mother) died from bleeding. Infusion of factor concentrates is generally the best and fastest way to stop bleeding.

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