True journalism is about service

By | Bleeding Disorders, Family, Featured, Hemophilia, Philippines, Project Share, Save One Life, Star, von Willebrand Disease | No Comments

Communication plays a very significant role in changing paradigms, especially in this digital age. In this speech, which I delivered at the Silliman University College of Mass Communication, I shared how I used my background in the field of communication to advocate for people with bleeding disorders.

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To be a woman in a man’s world

By | Bleeding Disorders, Featured, Haplos, Hemophilia, Laurie Kelley, Philippines, Project Share | One Comment

I am trapped in a man’s world. But of another kind. For many years, medical science believed that bleeding disorders such as Hemophilia only affect boys and men. And so even as I grew up experiencing heavy monthly bleeds, I was never considered a candidate for a bleeding disorder.

Hemophilia, von Willebrand Disease and other factor deficiencies are rare genetic disorders that affect the person’s ability to clot. It is usually sex-linked and thus, boys who inherited the X-chromosome from their mothers are more likely to show symptoms. On the other hand, girls who got it from their fathers, are said to unlikely show symptoms.

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Getting clotting factors in the Philippines

By | Bleeding Disorders, Hemophilia, Project Share, Resources, World Federation of Hemophilia | 4 Comments

I’ve been getting inquiries on where to buy factor concentrates in the Philippines. Factors are the substances in the blood that act in sequence to enable it to clot naturally.

People with bleeding disorders either do not have clotting factors in their blood or their factors are defective, causing them to bleed more than normal. Some bleeds are more fatal than others, and in fact, several patients (including my mother) died from bleeding. Infusion of factor concentrates is generally the best and fastest way to stop bleeding.

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