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Face-to-face with a rare bleeding disorder

By | Bleeding Disorders, Blood Brothers, Family, Featured, Haplos, Healing, Hemophilia, News, Philippines, von Willebrand Disease | No Comments

I had always thought that it was “normal” for girls and women to bleed heavily during their monthly periods. After all, I grew up seeing the chamber pot (arinola) in my parents’ room filled with red liquid on the weeks that my mom had.

It was not unusual for us—my mother, my sisters and I—to go home unplanned on days we had our periods because of blood stain. Our mother knew she was a “bleeder.” Like her, we would all “bleed” for weeks to months. But at a time when the Internet was still unknown and medical journals were hard to access, doctors did not have any explanation on our excessive and prolonged menses. Only boys and men could have bleeding disorders, we were told.

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Our 14-year-old chef at work. She's passionate about baking.

Homeschooling or unschooling?

By | Featured, Healing, Philippines | No Comments

Today, Star and I attended an orientation for homeschooling. After six months of “unschooling,” she is determined now more than ever not to go back to regular school.

The past six months have not really been that easy. Home-based study, whether through a structured curriculum or a free-willing one, like what we’re doing, needs focus, time and discipline. I like the idea of homeschooling. After all, the Bible tells us that parents should train their children the way they should go so that when they grow old, they will not depart from it. But it is easier said than done.

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Star’s healing journey continues

By | Featured, Healing, Hemophilia, Philippines, Star, von Willebrand Disease | No Comments

The downside of growing up with bleeding episodes is that it becomes your “normal” and you no longer distinguish what is suppose to be the “real” normal. I guess that is true with Star, as is with many others like her.

I have been like that too, believing that “normal” varies from person to person. My “normal” is having very heavy menses on the first three days that at times, I cannot go out of the house for fear of “flooding” the streets. Of course, that’s an exaggeration. But it’s too heavy that it’s too risky to go out.

Star and I always “quarrel” about keeping track of her menses. I insist that she crosses out the calendar the day it starts. This will make it easier for me to monitor her. As our rule of thumb, we’re suppose to infuse after a week of heavy menses. But she almost always forgets.

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