Getting clotting factors in the Philippines

By | Bleeding Disorders, Hemophilia, Project Share, Resources, World Federation of Hemophilia | 4 Comments

I’ve been getting inquiries on where to buy factor concentrates in the Philippines. Factors are the substances in the blood that act in sequence to enable it to clot naturally.

People with bleeding disorders either do not have clotting factors in their blood or their factors are defective, causing them to bleed more than normal. Some bleeds are more fatal than others, and in fact, several patients (including my mother) died from bleeding. Infusion of factor concentrates is generally the best and fastest way to stop bleeding.

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Reflections from a hospital room

By | Bleeding Disorders, Hemophilia, Star, von Willebrand Disease | 2 Comments

I am sitting here in my daughter’s hospital room, watching her as she sleeps, pondering on her future and the future of other Filipino “bleeders” like her. With the election fever high up in the air, I wonder what difference the incoming elected officials will bring to the very sick public health sector.

“Bawal magkasakit” is so real in this country where health care is almost like a luxury, especially for people with rare disorders like Hemophilia. Also known as “royal disease,” it is so coined because some members of the royal families are affected by it…. In the Philippines, the term “royal disease” takes a different meaning. It is considered a “royal disease” because only the “royals” can seemingly afford it. Hemophilia treatment is very expensive. Minor bleeds can cost a minimum of P30,000 per treatment. This does not include cost of hospitalization and the doctor’s fees. Major treatments can cost millions.

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