I am an advocate for people with bleeding disorders.
In 2007, our youngest daughter Star and I were diagnosed with von Willebrand Disease (Type 2M), a rare bleeding disorder also known as pseudo-hemophilia. It is an inherited disorder that impacts the blood’s ability to clot properly. As a group, bleeding disorders like vWD and hemophilia are rare.
For a long time, it was believed that bleeding disorders only affect men. But in 1926, Finnish pediatrician Erik Adolf von Willebrand, discovered a different type of bleeding disorder that equally affects men and women.
How our journey started…
Death they say comes in threes. The Philippine hemophilia community mourns the passing of 10-year-old Raven Pontillo, 24-year-old RJ Bunag and 2-year-old Kylle Loquias.